Other things I did this week include lots of ultimate frisbee, studying, and an afternoon of house calls. The house calls were really cool, we visited two different elderly patients in north Philly, and checked up on them to make sure they have the appropriate health care support systems in place to keep them in their homes as they manage all the illnesses that come with growing older. I wrote a little essay as a response to my experiences, which is included below. Disclaimer: I only had 250-300 words to work with. I ended up using ~430 and I still didn't have enough space to get all my feelings out. At the very least, here's a limited representation of what we saw at the first patient's house. (I've edited it a little bit since I last wrote it, to give a more complete picture of what I saw.)
---
As we exited the car and walked up the
steps to Mr. S’s house, I abruptly realized I had no idea what to
expect to see inside. Even though we had just been briefed on Mr. S’s
situation, I was not ready for the moment when I finally laid eyes
upon this 99 year-old man who was expected to die within the
year. I walked in prepared to absorb everything, to be able to fill
out my visit checklist, but most of all I wanted to soak in the real
essence of the home visit so that it would be imprinted in my memory.
The checklist has us fill out a
functional assessment of Mr. S’s ability to perform specific
‘instrumental activities’ of daily living (interaction with the
outside world) and ‘activities’ of daily living (taking care of
oneself). We observed that Mr. S is blind, almost entirely bed-ridden,
incontinent and possibly progressing into a more lethargic state and
deteriorating mental health – all of which means that he is largely
incapable of initiating any interactions with the outside world
(though many people come to him, which will be touched on shortly),
he cannot prepare his own medications, needs a lot of assistance to
get out of bed and move to a chair a couple feet away, can eat tender
food but needs help guiding the utensils to his mouth, and depends on
others to bathe and clothe him. All of these conclusions are based on what I've gleaned from his situation, and not from actually spending time with Mr. S. For me, the most striking part about entering his room was seeing him in his bed and realizing that he would almost never leave that bed for the rest of his life. As his situation dawned on me, I felt
encumbered by all the things this man deals with from day to day and found myself wondering how he views himself.
Despite all of these challenges
Mr. S has an incredibly large, varied, and most of all, loving,
support group. He depends on 24 hour care, and has a total of 3
home health aides that come in shifts to perform a myriad of
functions: a hospice nurse who helps with medication and other
assessments, a social worker, church members who volunteer time to
help him out, neighbors, and a number of dedicated family members
(which is amazing, considering that Mr. S has no children). All of these people are here to see that Mr. S can achieve his goal of dying at home. It's weird to think about caregivers as allowing someone to die, but the ultimate point is that he will be comfortable and happy til the very end. Evidenced by how many people love him, Mr. S is clearly deserving of all this respect. (If not a 99 year-old, then who is?) The
community support that is around to ease Mr. S into his final days is
truly a humbling and grand effort.
There were a number of things that hit
me as I experienced that home visit. Perhaps the most surprising
(pleasantly surpising) was how much the community loves Mr. S. It made me realize how integral a community can be in the life of an individual. Though this experience made me think a lot, I am obviously only starting to understand home-care. Nevertheless, I can see that it
definitely depends on a strong support network like the one I saw on
my first visit. It's good to see that home care can be a viable (and we found, cost-effective) alternative to a nursing home, hospice or hospitalization.
Well, that's all for today. Time to go celebrate this 'free' weekend, because the next one will have exams looming over my head!